Here’s a site that allows patients to send suggestions to researchers doing work on their health problem — translational research really is a loop!
The business model is to sell the data it collects to drug companies — a form of citizen science?
2 thoughts on “Translational Research Loop”
Very interesting, Cynthia. This reminds me of CTSI at Vanderbilt University. On their page for the Public they offer website visitors the chance to send in research ideas. http://www.mc.vanderbilt.edu/victr/pub/public/
Another one: Mixing Social Networking with Direct-To-Consumer Genetic Testing Information
I still have note decided whether I would do this myself: Getting to know my friends and family through genetics or making connections with DNA. But it is an interesting idea. 23andMe offers its customers the opportunity to share and compare their genetic health. They can discover how their genes affect their health, see what global regions are reflected in their genes with Ancestry Painting, find out what they have in common with other members of 23andMe, and what makes them unique. And they can participate in online surveys. https://www.23andme.com/
The 23andMe management states that in the future these genetic data could be accessed by academic and other research collaborators and with others through social networking sites as well.
For those who are interested in the social and ethical consequences as well as the risks associated with making one’s genomic information available, you may like to read the article “Research 2.0: Social Networking and Direct-To-Consumer (DTC) Genomics”
By the way, I really enjoyed looking at the unique snapshot of the 23andMe-Team. https://www.23andme.com/about/
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