Maybe this is a topic for us to tap into in the future?
According to the Clinical and Translational Science Awards (CTSA), “this conference will provide a forum to discuss lessons learned from the Rare Diseases Clinical Research Network, highlight successful collaborations to improve rare diseases research, highlight the involvement and essential role of patient advocacy groups to facilitate research and accrual of patients, and discuss the role of best practices across research consortia and research networks for translation of basic discoveries into clinical practice in rare diseases.”
Date: July 16, 2009
Location: National Instiutes of Health Natcher Auditorium
The conference is presented by the National Center for Resources (NCRR) and the Office of Rare Diseases Research at the National Institutes of Health.
Information about the NIH Rare Diseases Clinial Research Network is available here.